Sharing the Patient Perspective
Two young people, Jasmine and Sophie, who both live with Juvenile Idiopathic Arthritis (JIA), have created a powerful video explaining why research into the condition is so important. As Patient Partner Group members, they contribute invaluable insights and feedback to the TRICIA network, ensuring that research reflects the real concerns of those living with JIA.
Why Research Matters
In the video, Jasmine and Sophie share their personal experiences with JIA, the challenges they face, and how research can improve treatment options. Their voices bring a unique and powerful perspective, helping researchers, funders, and other stakeholders understand the impact of JIA and the need for continued investment in research.
A Valuable Resource for Advocacy
The video serves as an impactful resource for presentations to funders, researchers, and healthcare professionals. Hearing directly from those affected by JIA reinforces the urgency of research and the real-life difference it makes. No one can articulate the need for progress better than those living with the condition.
Watch the Video
You can watch Jasmine and Sophie’s video here: https://www.youtube.com/watch?v=Io10pTLQlXY&t=21s
Produced in March 2024, this video is a testament to the importance of patient involvement in shaping research and driving meaningful change.
