TRICIA is currently working to develop programs that focus on working with families and patients whose lives are affected by Juvenile Idiopathic Arthritis (JIA). As a network, TRICIA understands the importance of involving patients and their families in the decision-making process.
From the outset, we have consulted patients and families in study design and importantly the logistics of performing biopsies in younger age groups. These patient groups have been instrumental in the development of patient-facing documents to support recruitment.
We are also committed to engaging with patients and their families. Working with our patient partner group, as well as organisations such as ‘Your Rheum’ and CLUSTER, we are developing accessible and age-appropriate information about synovial biopsy procedures. This material will be available on this website to help inform and support families considering participation in the research.
