Steering Committee
The TRICIA Consortium Steering Committee (SC) provides independent guidance, oversight and strategic advice for the TRICIA network. It ensures that our work remains safe, ethical, inclusive, and aligned with the needs of the childhood inflammatory arthritis community.
Through expert and lay input, the SC supports TRICIA’s mission to improve health outcomes for children and young people by harnessing the power of health data and research collaboration.
Purpose of the Steering Committee
The Steering Committee is responsible for:
Providing independent oversight of TRICIA activities and progress
Advising on data governance, safety, and data sharing
Reviewing new project proposals seeking to use TRICIA infrastructure
Upholding ethical standards and promoting inclusion and equality
Representing the views of key stakeholder groups, including young people, families, clinicians, and researchers
Through expert and lay input, the SC supports TRICIA’s mission to improve health outcomes for children and young people by harnessing the power of health data and research collaboration.
Membership
The Steering Committee includes representatives from across the TRICIA community and beyond:
Independent Chair: [TBC]
Clinical Leads:
Professor Adam Croft (University of Birmingham)
Professor Lucy Wedderburn (UCL / Great Ormond Street Hospital)
Patient and Parent Representatives:
[TBC]
Organisational Representatives:
UKRI-funded CLUSTER Consortium
Additional representatives with expertise in clinical research, health data, ethics, and regulatory standards are invited as needed.
Steering Committee Activities
The Committee meets twice a year and provides input on:
The strategic direction of TRICIA
Governance frameworks for safe data access and use
Partnership development across research and clinical sectors
Engagement with patients, families, and the public
The SC also reviews an annual report detailing TRICIA’s progress, challenges, and future plans.
How to Get Involved
We welcome expressions of interest from patients, families, clinicians and researchers who would like to contribute to TRICIA’s governance or advisory activities.
Please contact us to find out more.
